Masthead header
Joshua Casteel (In Memory) bio picture


  • "If I am bound to the belief that God is in control of the cosmos, and miracles can and do happen, then there is no 'hypothetical situation' wherein God's ability to perform miracles through the faithful actions of the merciful ceases to be a possibility."

    Joshua's above words continue to resonate with us, his family, friends and acquaintances seeking to live out that same belief. Though he is no longer with us bodily, we strive to faithfully remember and testify to Joshua's witness among us, through the establishment of The Joshua Casteel Foundation and other initiatives on which we will continue to provide update through this website. Thank you for joining us.

    "The just man, though he die early, shall be at rest." (Wisdom 4:7)

    Joshua was diagnosed in early November 2011 with stage IV lung cancer (adenocarcinoma), which ultimately took his life on August 25, 2012 at the age of 32. The many of us who survive and love him will continue to pursue the heavenly justice to which Joshua (in life, and now in death) testified.

Belated Update…Appointments galore/New hurdles

We’re sorry it’s been awhile since the last update, but with the addition of radiation everyday and then the usual physical therapy, massage, Dr. appts. both in CR and Ia. City VA, along with the usual duties of juicing, trying to find time to catch some short naps, fixing meals, and food shopping to name a few we stay rather busy. But then, you already know that, I’m sure. But we do feel bad when we can’t get to the computer to keep everyone updated though.

Radiation is going well, but I have to say that there are new ‘physical pains’ entering into the picture all the time. Tonight he started aching all over, not just his hip and legs, and we’re not sure what to attribute that to…rehab, the radiation, lack of sleep last night. He was getting more jerking which would wake him up. This is supposed to be from the meds he’s on. It’s always a guessing game as to what is going on, even for the doctors it seems. This is all wearing on him and making it hard to keep holding on to the sense that we both had from the beginning that God has clear intentions to bring him through this in a fashion where he can still work and move forward on his plans and dreams. The climb feels very long right now, but I know this is normal for long physical battles. There are times of discouragement and we have to hang on and wait for God to pull us through those times. So please pray for him.  We have men’s group from church (the one Rick started which makes it even more special to Joshua) and that is a real encouragement to him every week.

And we have so much to be thankful for. Friends are handling mowing our yard…yea!! And have been helping on other outside projects, helping to fix my riding mower, trimming back my flower beds which were in dire need etc. (thanks LD and Dave Coates…such selflessness) Cards and gifts have continued to come in which totally amazes us. Many of you are sticking with us on this journey and it is such a lifeline for us to keep going, especially in times of discouragement. Joshua would like to answer each card, text, letter, etc. but he just doesn’t have the time nor the emotional energy right now with the level of pain he is still in. Fighting the cancer takes most everything he’s got in him. So please know that we still pray for you at night and thank God for your participation in our lives and pray His blessing on you all.

Oh, he ordered a real cane on line, so the putter will be a thing of the past soon. I still think it made a cool cane, but it bowed some and he didn’t feel it was the safest. He will probably be using a cane for some time to come until his hip heals. Sometimes I look at his new thin stature, walking with a cane and think about all the working out he loved doing, walking all over Chicago, playing an occasional soccer game etc. and I feel so bad for him. And then I have to bring myself back to what is…reality as we know it now and remind myself that God knows what He is doing in his life and it is for ‘good’, better than if he had all those things back in his life right now. The day may come, but for now He is doing something far more important…obviously, and that is what is true. I feel myself doing better in accepting where we are, not quite as anxious, and able to take full advantage of being able to ‘serve’ him while I can. I want no regrets, and I realize this is all as much for me as for him. I’ve had 2 sessions with a therapist who is doing a technique called EMDR that I believe is helping with the anxiety. Or at least I can see that it may have a good potential of doing so. So I am thankful I was told about her.

Well, I think that is about it. It was great to hear from one of his students. (Thanks Maddison) It’s nice to be missed. He definitely misses being there with all of you as well.

Blessings to all,
Kristi and Joshua

PS. Thanks again to Hannah, Erin, Katie, Bobby, Mary Ann, Kim and anyone else who worked on fundraisers. They were fun and a huge success.

April 19, 2012 - 8:02 AM

Rodger Routh - Glad to hear your working on self care Kristi.
I think of Joshua daily and am sending prayers your way. The talk you gave in Ankeny as you recieved the Dingman Peace Award is being shown to all students in Catholic schools in the Diocese of Des Moines grades 7 thru 12. Bishop Pate who came to listen to you Joshua sent an email out encouraging this! Your wisdom continues to spread. Blessings to you my friend.

April 19, 2012 - 3:04 PM

Chad - Thanks for the update. Our prayers continue.

Rodger Routh, that is amazing, and very encouraging. Thanks for sharing.

April 19, 2012 - 8:39 PM

Joseph - Thanks, Kristi, for the update. I really appreciate it. Our prayers continue to flow from Princeton too. Augie did one of his “healing prayers” for Joshua tonight before bed (the one where he puts his hands out and fervently blows air out of his mouth). :) Love from our family to yours.

An unexpected Answer

A new update just to let you know what we found out about Joshua’s hip problem. Rehabilitation didn’t want to deal with it since they didn’t order the MRI so they referred it back to our oncologist who then sent the scans over to the radiologist. They decided that they have to go by the pain he’s having rather than just the scan to tell them that it is probably the cancer lesion that has been there on his hip from the beginning that is causing the pain. So, radiation of the spot is probably the best and only choice to deal with the pain. We had the consultation today and he will have his first treatment tomorrow. Please pray that this radiation goes as well as the first session on his spine. He had very few complications and it seemed to take care of the present cancer and much of the pain. He’s looking forward to pain relief in a big way.

He’ll have 14 treatments, taking it a little slower to cut down the chances of collateral damage in the area. They are very concerned that he doesn’t fracture that hip (he’d have to have a pin put in to repair it because of the location). And he’d be laid up for several weeks…not a good situation. So he is on a very limited activity restriction…only walking. We laughed when he said no running or weight lifting, as if he could even if he wanted to with the level of pain. The downside to all of this is that he won’t be able to finish out his semester of teaching in Chicago. He goes for radiation every day for almost three weeks. That was a real disappointment to say the least. But at least he was able to complete half of the semester. There’s a chance he’ll be able to make it to the last class, but that’s slim. It was a real gift to have that opportunity while it lasted.

So, he’s on hydrocortisone now that is slowly waking up his adrenal glands so he can stay awake for more than 15minutes a day and he will slowly wean off that most likely. And we’re working on the existing pain, so we’re making progress. Without his class, and having a little more energy, maybe he’ll  finally be able to read more or write since he will be spending a good amount of time in bed. Pray for this next portion of his healing experience, that God will make it fruitful for him. And maybe even a short time of being beside still waters, (with no new dilemma popping up on the scene). He’s such a good example of accepting what God puts in front of him for His  purpose in his life. I’d just love to see him find a little equilibrium for awhile so he can plan for some times of real enjoyment…maybe even attending a sporting event or something he hasn’t been able to even consider since his diagnosis. We’re scheduled to go to the No. Shore at the end of May which would fit that bill, so please pray that he will still be able to make that with the radiation and its after effects.

Jered, if you read these updates thank you, thank you, thank you, for your love and generosity. How much that meant to Joshua. We love and miss all of your family.

And there are many other thank you’s we just can’t answer personally because of time constraints, but we hope you do know that no thought, gift, card, gesture, help, or prayer goes unnoticed or unappreciated.

With love to you all,
Kristi and Joshua

PS.  I hope you get a chance to see the videos and pictures of all the men (and 4yr. olds) standing with Joshua as part of “Team Joshua”…the pre-requisite having a shaved head like his.  He loves it and what a morale booster.  Thanks guys!

April 15, 2012 - 9:18 PM

mary ann - …i miss you two so much…please know, i am not off having a good time…just trying to get by…love, love, love!

April 17, 2012 - 9:45 PM

Maddison - Hi Joshua and Kristi. I just wanted to leave you a note of encouragement. Joshua, we have missed you in class! We’re getting by, but it just isn’t the same without you (small potatoes and pops are hopelessly mixed together and there are no thought provoking notes on the board!) and we all wish you were closer so we could just come to you :)

I’m praying for healing, for peaceful rest, for effective treatments and for uplifted spirits. My small group at church is praying for you both as well. God’s plan is a great one, even during these rough spots; trust in that. Rest well this week and be blessed. A big Go Team Josh from Columbia and your workshop class!

April 20, 2012 - 8:32 AM

Cheryl Weaver - I work in the home medical equipment and services industry. When you said Josh ordered the cane on line it made me think you may not be taking full advantage of Josh’s VA benefits. If Josh needs additional medical equipment or services I encourage you to see if there is insurance coverage available. Do you know if a case manager with insurance is involved with his case? This can be of help. If I can ever be of assistance for advise in this area please feel free to call me at 1-800-482-1993 x 6561.
Cheryl Weaver
Asst. VP HOMELINK Customer Service

April 22, 2012 - 2:53 PM

admin - Cheryl,
Thanks so much for your concern and interest in the situation of Joshua’s cane. Yes, he is eligible for a cane from the VA but they are pretty rudimentary as you can imagine for necessity sake, I’m sure. Since there’s a ‘little’ difficulty emotionally (he’s never voiced it, but I can tell), having to use a cane, I didn’t say anything when he went on line to look for one. The one he got has a couple of functions actually and it has a leather like grip which he liked a lot for safety sake. So much has been taken away from him with this illness, including much of his physical youth, and there is so little he can actually do, that I thought buying something that has some interesting features to it might bring a little enjoyment into his life right now. (he does have his Dad’s love of gadgets…like most men, I’m sure). But we can check with our insurance to see if it has to be purchased from a medical source in order to be covered. So thanks for the suggestion. We do have a caseworker for both insurances as well. I really appreciate your taking the time to check in with us, however. Thanks so much.

April 22, 2012 - 3:09 PM

admin - Sorry Joseph,
I forgot that the sight was set up by you? Is that why your name appears on the reply? I’ll let Cheryl know it was from me. I should put my name on everything or figure out out to get mine on there. Just another computer skill I have yet to learn. And not sure how this one is going to come up…probably the same. Never ending!!

But while we’re conversing…how is everyone? Hope things are going well for all of you. What are the latest cute and funny antics from Augi? Is that how you spell it? And concerning the cane, I liked the putter he was using. It was kind of cool and everyone always commented on it, but he said it was starting to bow and become unsafe. Oh well, good idea while it lasted. :-) Give our love to Nora and the kids.

Kristi

He is Risen…Our only hope!!!

Happy Easter Everyone…We hope yours was a blessed reminder of the Hope we have in this life and the next because Jesus conquered death. And our hope is also that by conquering death he conquered life and all that might come at us. He is not only in control (sovereign) but with us through it all. THAT is what keeps us going and keeps us hopeful. Not that we don’t have hard days and weeks, but we know at the end of every struggle is God’s plan for us working together for good.

And this was one of those weeks. As I mentioned Joshua has had a lot of pain in his hip/groin/leg for the last 2 weeks at least. I lose track as we go from one thing to another. It came out of the blue and has gotten progressively worse. He had an MRI last week which showed no change of the spot that has been on his hip since his diagnosis, as well as no fracture which the Dr. was even more concerned about I think. Because of the pain and having to get around with a cane (actually his putter…the young man’s version of a cane…pretty cool actually) and feeling the most comfortable in his bed, we missed most of the Holy week celebration. So he was determined to try to make it to Mass either Sat. or Sun. I wasn’t sure given the time frame of Easter Vigil and the hard pews etc. if either would work out. Our priest suggested him sitting in the narthex outside the sanctuary in the comfortable chairs which I thought was a great idea and come a little late on Sat. night. Well, Sat. night I got one of the worst migraines I’ve had in awhile and I knew the incense would be a problem so I was under the assumption we’d go Sun. morning. But he really wanted to go Sat. night as well which he did. He took the advice to go a little late but did not take the advice about the chairs. He sat in the pews and also participated in the kneeling, sitting and standing that takes place during the mass. That was not in the plan, but I was not there to monitor and he really wanted to be in the sanctuary. (and decided that a little pain would help him connect with the message of the cross and what Jesus suffered for us). While I’m sure it did, as he really enjoyed the Mass, he did end up with greatly increased pain by Easter morning. He couldn’t attend with me and stayed home in his bed where he had the worst incident of extended searing pain that he’s had to date. He said it took about 20 minutes for it to calm down as he hung his leg over the side of the bed. The pain is always there but not always the searing sharp pain. To be honest I was frustrated about his choice the night before, but who am I to say what the Lord wanted to do through that experience?. It’s just very hard to see him suffer.

Consequently, we won’t be going to Chicago this week again for his class. The drive there and the three hour class is just too hard when he’s in this much pain and so immobile as far as sitting, getting in and out of the back of the car, and getting up and down. Walking is actually easier some times. So he’s pretty bummed about that and feels very badly that he has to miss yet another class. A friend is going to fill in, thankfully, but it’s certainly not what he was hoping for and he doesn’t like to let them down.

And so far we still have NO clue what is causing the pain, so that is our goal this week. We’re hoping the Dr. with Physical Medicine and Rehab. will have some ideas after looking at the MRI or in discussion with him. Please pray for wisdom for him. The oncologist didn’t seem to have a lot to say about it as it didn’t seem to relate to his cancer.

I want to thank both Dave Coates and Lovar Kidd. They responded immediately to my request for hiring someone to do my lawn. I’m not sure if they will let me pay them or not, but Dave spent all day last Friday working on it. The yard is bigger than it looks from the front, so I’m hoping they can share the load. What a relief and burden that takes off my shoulders. It was hard for me to keep up with when I didn’t have Joshua home to care for, even with a riding mower.

And friends continue to come visit, text, or send cards, some with monetary gifts in them. We are so thankful. God just continues to take care of us in so many ways and yet I find myself still feeling so overwhelmed at times, anxious, or just plain frustrated with all the stresses that are just a part of this whole process. I’m trying to not let it spill over to Joshua, he has enough on his plate. But I’m sure it does. He’s a pretty perceptive guy. But I feel so inadequate or ungrateful at times, seeing all the amazing things God is doing and yet having such a hard time keeping up emotionally without feeling so overwhelmed most of the time. It’s just so hard for me to have a back log of so many things that need to get done and not be able to get to them in the proper time frame. I am one to like order and a certain amount of simplicity, so having my world in such an upheaval is very hard for me. Sounds very much like the homily we had at Mass today…thanks Fr. Dave…I am trying to ‘listen’ and believe that things will get better or turn around in time.  In fact Samuel has been going through my mind lately, “Speak Lord, for I am listening” so I guess that’s my cue.

Again, I want to thank everyone who worked on the Online Auction. I heard today that it was very successful. Thank you so much, all of you.

You’ve probably noticed on line the video that Roger Routh put on of the acceptance of the Bishop Dingman Award for his work in the area of Peace and Justice that we attended in Des Moines last weekend. It was a wonderful night, and despite his leg problem he was able to give almost an hour long acceptance speech. I was very proud of him and he did a great job, considering his current physical state. He stood the entire time. Thanks for the video, Roger and all that you have done for us.

One positive thing that took place last week was going to physical therapy. Joshua laid out his ambitious goals, and the two young therapists listened and were positive in suggesting they just get started…but that they take it slow at first to see what his body can handle at this time. I breathed a sigh of relief as Joshua tends to assume he can do what he sets his mind to. Or maybe it’s just ‘wanting’ so badly to get back to some kind of normalcy giving him a little more hope. It’s got to be so hard to be stopped in your tracks as suddenly as he was. He’s done such a good job of not complaining and wanting to accept whatever God has for him to learn through all of this.

Well, I think that about covers it. I hope the next time I write we’ll have an answer to the cause of his hip and leg pain. And we’ll be doing what we need to do to let it heal.

We hope you are all well and you have blessings abounding.

Love to you all,

Kristi and Joshua

Ups and Downs…Such is Life!!

Just a quick note to let you all know both the ups and downs of our last 2 weeks.  We’ll start with the ups.  Since Joshua developed this hip/groin/leg pain that can be severe at times, we’ve had to pray for miracles to allow him to do the things that are important to do.  Saturday night in Des Moines, I mentioned that he was awarded the Bishop Dingman Award for his work towards Peace and Justice.  Bishop Gumbleton also spoke and it was very interesting and their talks complimented each other so well.  Joshua was in a fair amount of pain, even after his shot of pain killer, but he was able to talk for 45 min.-an hour.  He did a great job, and it was a real honor for both of us to see him receive this very important award.  He was very humbled.  The people were so warm and welcoming and they were very generous in giving us a gift as a donation at the conclusion of the evening.  What a great group of committed people.

 

Then we came home only to pack up the car to go to Chicago on Monday morning for his class.  We made it fine, but he was extremely tired after the class and felt he didn’t have what he needed physically and mentally to teach the way he would have liked.  He was tired and disappointed to some degree and slept the entire trip home.  Since then it has been a downhill slide  concerning his hip and leg.  We go to Physical Medicine and Rehabilitation tomorrow and we are praying that they can come up with some answers as to what may be causing the pain.  His MRI showed the same spot that was on his hip from the beginning, but it shows no significant change.  However, they did say he strained his left glut muscle but it is the right side that hurts.  So hopefully that piece of the puzzle will be figured out tomorrow.  Please pray for the doctors wisdom to look in the right direction for answers.

We are really hoping we can go to Mass on Sunday.  Right now his pain is too great to think of sitting in the pews, hard as they are, and definitely no kneeling, standing and sitting.  We’ll be very disappointed if we’re unable to go.

Since I am doing the juicing, there are a lot of things that just can’t get done.  One is cleaning the house.  I keep it fairly orderly but it hadn’t been really cleaned for weeks.  Today a very good friend came over and cleaned the whole house…minus Joshua’s room.  (he was asleep)  Oh what a blessing.  Not only did it relieve a big burden but it feels so nice to see things fresh and clean.  What a morale booster.  Thank you SO much Micaela.  I love you.

Also, I’m realizing that I am not going to be able to mow my lawn regularly this Spring and Summer, because of the added extra duties with juicing, cooking, more appointments etc.  If there is anyone out there who would like to earn a little extra money please contact me.  I have a nice riding mower that can be used.  That will take a HUGE  burden off my shoulders.

Last, but not least, a very good friend of mine just found out that she has breast cancer.  Supposedly it is the good kind that is not pervasive and she is a candidate for a lumpectomy.  She will have radiation as well as a back-up measure.  This is a shock and of course frightening as it enters her into the unknown.  Please pray for her.  I haven’t asked permission to give her name out yet, so if you could just pray for my friend I’d appreciate it.  Thanks so much.  There’s just way too much cancer in this world.

Again thank you to everyone that continues to give and help out. We are so thankful to God for each one of you.

God Bless and Happy Easter…He is Risen!!!

Kristi and Joshua

PS.  The auction is almost over and it went great.  Thanks so much ‘girls’!  :-)